August 18, 2019
I don't like to be wrong. I like to be the bearer of accurate information, without exaggeration whenever possible. I would say I tend to be on the side of cautiously optimistic, and try not to over excite others with good or bad news. I am often asked how Heston is doing and as his primary caregiver and the person present at all his appointments I want to be the best source of information on his well being. I want to not only be able to give updates on his present condition, but also insight and direction on how we expect his health to continue to progress. I want so desperately to help myself, my family and so many around me be as prepared as possible when his health deteriorates. Last September when school was starting Heston was so sleepy. It felt ridiculous at times wheeling him up to the front doors of the school, often sound asleep. His body seemed tired and I feared things were slowing down for good. He improved with a c...